Tell us about your partnerships
As an organization, Genetic Alliance has a network that includes more than 10,000 organizations, ranging from advocacy organizations to academia to industry. Disease InfoSearch has partnered with advocacy organizations from its inception 10 years ago. We have collaborations with about a dozen other information purveyors with agreements to use web services and other technologies to transfer information. In the next iteration of DIS, we are excited to partner with additional providers of credible information about health conditions that are based here in the United States and internationally.
Are you currently targeting other specific populations, locations, or markets for your innovation? If so, where and why?
With our revamping of Disease InfoSearch, we are strengthening the search tools to allow researchers to more easily identify support groups that are interested in partnering in research. By expanding the utility of the resource to include researchers (in addition to the healthcare providers and patients the tool already serves), more time and money can be used to carry out research that will lead to treatments and improved quality of life.
What type of operating environment and internal organizational factors make your innovation successful?
Genetic Alliance is built on a strong ‘team of teams’ culture. We understand that a hero culture is not sustainable and does not empower either organizations or communities. We empower staff to lead with their strengths and weaknesses. Projects such as this one are a manifestation of an internal culture. Further, we launch movements that enable lay people to be principals in the healthcare enterprise, and this project is a reflection of that environment.
Please elaborate on any needs or offers you have mentioned above and/or suggest categories of support that aren't specified within the list
Any project can only increase in value with increased investment and collaboration. Marketing and media will help get the word out about this incredible resource to all who could benefit from it.